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Asperger Syndrome: The OASIS Guide, Revised Third Edition: Advice, Inspiration, Insight, and Hope, from Early Intervention to Adulthood [Format Kindle]

Patricia Romanowski Bashe

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Descriptions du produit

Revue de presse

“ Almost an encyclopedia of Asperger syndrome, its wise advice [is] based on reviewing the research literature and a personal and insightful perspective.”—Dr. Tony Attwood
 

“Patty Bashe answers every parent concern: from the first hints of suspicion about a toddler to the day in which our children will outlive us. It is that comprehensive.”—Michael John Carley

“A marvelous book full of practical and sensible suggestions and advice.  This volume will be of great help to parents and professionals alike and a invaluable resource for all those concerned with supporting individuals with Aspergers.” —Fred R. Volkmar, M.D., professor of child psychiatry, psychology, and pediatrics, Yale Child Study Center

"Patty Romanowski Bashe has done it again. Taken an ever increasing amount of information and put it in one place as an indispensable guide to parents and educators working with those with Asperger Syndrome. This is a compass to send you in the right direction to get the supports you may need. Thank you Patty! " --Jed Baker, Ph.D, director of the Social Skills Training Project, author of No More Victims: Protecting those with Autism from Cyber Bullying, Internet Predators & Scams

Présentation de l'éditeur

Since 2001, The OASIS Guide has been the reliable, comprehensive, authoritative guide to Asperger syndrome. This fully revised, updated, and expanded edition captures the latest in research, strategies, and parenting wisdom, and delivers it all in the empathetic, practical, and hope-filled style The OASIS Guide is famous for. Author Patricia Romanowski Bashe has revised this edition of Asperger Syndrome to reflect the latest in:
·Working with Professionals: building a team, negotiating for your child, and keeping everyone’s focus on high expectations for academic, social, and emotional success.
·Special Education: from early intervention through transition, college, and other postsecondary options, including how special education works and steps to take when it does not.
· Health and Safety: sexuality education, health care, and insurance coverage, as well as understanding the real-life health and safety risks children with AS face and learning the steps that only parents can take to protect them.
·Options and Interventions: with an emphasis on established guidelines for evidence-based treatments, including medication, applied behavior analysis, cognitive-behavior therapy, Social Stories, Comic Strip Conversations, and much more.
·Planning for the Future: Teaching today for independence tomorrow.
For anyone else with a life touched by AS, Asperger Syndrome: The OASIS Guide is packed with resources to handle any situation, from understanding a diagnosis, realistically evaluating options and interventions, and nurturing the whole child with an eye to emotional health, happiness, and independence in school, at home, and among friends. Raising young people with AS to grow up successful, safe, independent, and happy is the goal. Asperger Syndrome: The OASIS Guide is your map.

Détails sur le produit

  • Format : Format Kindle
  • Taille du fichier : 2047 KB
  • Nombre de pages de l'édition imprimée : 594 pages
  • Pagination - ISBN de l'édition imprimée de référence : 0385344651
  • Editeur : Harmony; Édition : 3 Rev Upd (14 octobre 2014)
  • Vendu par : Amazon Media EU S.à r.l.
  • Langue : Anglais
  • ASIN: B00J1ISJGO
  • Synthèse vocale : Activée
  • X-Ray :
  • Word Wise: Non activé
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Commentaires en ligne

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Amazon.com: 4.3 étoiles sur 5  6 commentaires
2 internautes sur 2 ont trouvé ce commentaire utile 
5.0 étoiles sur 5 Every parent of a child with Asperger's should own this book! 14 octobre 2014
Par L. Townsend - Publié sur Amazon.com
Format:Format Kindle
Every parent of a child with Asperger's should own this book! I can't rate it high enough! This is a wonderful, much-needed resource. It's a reference book that clears up misunderstandings and offers guidance where there is often very little. There are many that this book could help. "The Centers for Disease Control and Prevention (CDC) state that 1 in 88 children have ASD (Autism Spectrum Disorder). ASD is more common than childhood cancer, Down syndrome, muscular dystrophy, or cerebral palsy."

The author describes terms like "Neurotypical Land," used to describe the sometimes-foreign culture of what most people define as "normal." Reading the book, I learned that it was Dr. Asperger who first pointed out the Asperger's child's vulnerability to being bullied and their need for special, explicit instruction in social and adaptive skills. The author states this important take-home message: "Each individual with ASD is truly an individual, in ever way. Not every individual comes with behaviors and symptoms that make a "perfect" match with any diagnostic criteria.... these differences, deficits, challenges - whatever you decide to call them - are pervasive in that they touch most aspects of daily living."

I have a son with Asperger's. He is now in his early thirties. When he was in school, he was tested for everything under the sun and diagnosed with everything. Back then, no one in our school system knew about Asperger's. We visited psychiatrists, psychologists and counselors and no one seemed to know what he had or what to do. They just knew there was something wrong. We finally received a diagnosis of Asperger's when he was in his early twenties. As the book describes, many parents feel a sense of relief at finally knowing what "it" is. That's what happened to us.

When I think back to all the questions we've had and the crisis we have experienced, this book would have been an invaluable resource. Even now, we are still experiencing crisis. I plan to share the author's suggestions for coping with those problems with my son.

While this book is quite comprehensive, if it should miss something, there's a large list of resources at the end.

IF you have a son or daughter with Asperger's or who is on the autism spectrum, do both of you a HUGE favor, and buy this book!
1 internautes sur 1 ont trouvé ce commentaire utile 
5.0 étoiles sur 5 Must Have Resource 14 octobre 2014
Par tswinnett - Publié sur Amazon.com
Format:Broché
f you keep up with health news, you know about 1 in every 68 children is somewhere on the autism spectrum. The odds are even higher for boys – 1 in 42 boys will be diagnosed with autism or Aspergers. This means if you attend a church of a couple hundred people, several families may have at least one member who has been diagnosed with autism (New research is showing a strong hereditary link.)

While some congregations are starting to reach out and make their classes and services more inclusive, many don’t know how to help. Some may even be wondering why they should. I have talked with many families who have children with autism or Aspergers who go from church to church looking for Christians who will make them feel at home.

It doesn’t have to be this way. If we are truly reflecting God’s love, everyone should feel welcome, accepted and loved when they walk through the doors of our church. This may mean your church needs to educate itself on how to minister to families dealing with autism and Aspergers. Even if you studied special education in college, the information available has changed drastically over the last twenty years and you may need to get more accurate information.

Whether you are a parent who is concerned about your own child or a church who wants to reach out to families and serve them, Asperger Syndrome: The OASIS Guide, Revised Third Edition: Advice, Inspiration, Insight, and Hope, from Early Intervention to Adulthood is a great updated resource to consult.

Books like this can become clinical sounding very quickly. Written by the mother of a child with Asperger Syndrome, the book remains easy to read for even the most stressed out parent. Bashe also has the educational credentials to share the latest in successful intervention strategies. Having raised a child with Asperger Syndrome, Bashe understands all too well the concerns and questions parents may have.

The book is well organized for either the person skimming for specific information or for the person who needs to fully understand everything they can on the subject. Bashe walks parents through everything from what to do to get an accurate diagnosis to what to do once you have learned your child does indeed have Aspergers. She carefully explains all of the possible behaviors as well as other symptoms that may appear later. A large part of the book carefully explains every possible treatment, intervention and drug that may be suggested to help. She even refers the reader to other sources for the most detailed information on each topic.

It would be easy for Bashe to patronize her readers. After all, it appears she is an expert on the subject - both personally and professionally. Yet throughout the discussions on therapies and interventions, she is quick to share the mistakes she made along the way. One comes away with the sense she is walking along side you on your journey rather than lecturing you from a podium. She even addresses a lot of the “what if” issues that trouble many parents – including what may happen to your child once you are no longer able to care for her.

I think my favorite part of the book is that the author is able to balance reality with a healthy dose of hope. One of my favorite quotes could really apply to everyone, but I know it will give many parents hope. “Remember, your child is not a “done deal” – not by a long shot. You do not know everything he is capable of achieving or overcoming. No one does.” (p.146) I would add – God does and He has a plan for your child. And that is a hope any parent can grab and hold.

With autism and Aspergers becoming more common, I believe this is a must-have reference book in the library of any teacher, volunteer and of course parent. Although Bashe did not address the idea of faith and Asperger’s directly, I do believe her discussions on manners, empathy and social interaction will give the reader enough information to help guide the faith journey of the child or teen who has Aspergers. I know this book will become a permanent part of my reference library.

A copy of this book was given to me for free in exchange for my honest review.
5.0 étoiles sur 5 Comprehensive and Thorough Guide 23 avril 2015
Par Jerry L. Hillyer, II - Publié sur Amazon.com
Format:Broché
Title: Asperger Syndrome: The Oasis Guide

Author: Patricia Romanowski Bashe

Publisher: Harmony Books

Date: 2014 (3rd rev ed)

Pages: 564

[Disclaimer: I was provided a free copy of this book in exchange for my fair and unbiased review. I was in no way compensated or asked to write a favorable review. There you go.]

This book has been around long enough and been through enough iterations that I don't need to spend a great deal of time writing about it's overall contents and objectives. The subtitle says enough: "Advice, inspiration, insight, and hope from early intervention to adulthood." Straight up: this is a book about Autism Spectrum Disorders with a special emphasis on Asperger Syndrome.

The book is thorough and comprehensive and what began as an internet project eventually morphed into this present (3rd edition) volume--a veritable encyclopedia of information, resources, and insight into the world of ASDs and AS. The importance of the volume is expressed early on:

Currently, the Centers for Disease Control and Prevention (CDC) state that 1 in 68 children have ASD. Autism spectrum disorder is more common than childhood cancer, Down syndrome, muscular distrophy, or cerebral palsy. Authorities who focus on AS estimate that perhaps 1 in 250 present with that profile. (15)

These are staggering and important numbers. On the one hand, it means that more and more parents need to be provided with resources and information for early intervention, treatment options, transition services, and long term stability of their children. On the other hand, it means that the public education sector needs to continue preparing educators, therapists, and intervention specialists to service the needs of this growing and demanding population of children. We need to know about evidence based practices, service providers, and available resources for our students who present with an ASD in general or AS in particular.

There is no shortage of 'experts' in the field of ASD and wading through the plethora of information, discerning between this expert and that expert, is no easy task--especially for those parents whose children are being identified earlier and earlier. As an educator, I will say this: wading through the muddled mess that is special education is a mind-job in and of itself. Having a resource at your fingertips that can provide you with a clear path and information on reliable sources is a must when first encountering a director of special education, an intervention specialist, and the handful of therapists who will work with the child.

This book will be a reliable resource for such parents. In the book you will find:

Information about what AS looks like; although, the saying, 'If you have met one person with an ASD you have met one person with an ASD.' No two people with AS are alike. There is a lot professionals know; there is a lot they do not know.
Discussion of various interventions including one of the most popular, Applied Behavior Analysis. Parents are cautioned to keep their children first and to ask questions--a lot of questions before undergoing any sort of treatment regimen. I found the section on OT (Occupational Therapy) especially helpful.
There's an important chapter about medications. As always, it is important to ask a lot of questions of experts before undergoing any sort of treatment involving medication
A significant chapter covering aspects of the child's life at school. Here, I speak as a professional. The child's life at school can be one of the most complex, draining, demanding, and beautiful experiences if the professionals working with the student are 'all on the same page' and work together. Consistency across the board and respect for the student's disorder is vital.
Discussions about various laws and how they affect the families of children with an ASD both as young people and as the child grows into adulthood.

There is much, much more too. The book is written in a nice, conversational style and technical jargon is carefully explained making the book accessible to lay-folks--for whom it is written!--but also stimulating for the professional. I don't think this is the sort of book a person will read for pleasure, but I do think this is the sort of book that will need to be kept close. I expect the new parent will want to keep a pen handy for highlighting and underlining and perhaps also some sticky-notes for noting important websites and other resources they want to pursue.

The general education teacher will also find this a helpful volume too since many students with AS are fully integrated into the general population of students at school. This book will be a handy resource when learning about characteristics and qualities that make students with AS so unique and valuable in the classroom. The teacher will also have a helpful resource to share with colleagues and parents who have questions.

Finally, the intervention specialist will want a copy of this book too. There is a helpful index where subjects can be accessed easily and quickly and also scattered throughout the book are various resources--both online and in print--that the teacher may want to add to their library. The section between page 356 and 374 dealing with tantrums, rages, and meltdowns is essential reading for parents and professionals alike. It is this section, among others, that I will be sharing with the paraprofessionals in my own classroom.

I highly recommend this book. Even if the prevalence of ASD levels off, there will still be a large portion of the population in need of care and intervention. There will always be families and educators who need helpful and thoughtful resources in order to meet these needs. This book is as timely as ever and should be in every parent's hands. It is comprehensive and thorough yet highly accessible.

5/5 Stars

PS-I am not, necessarily, an advocate for any of the particular 'treatment' or 'therapy' options in the book. I think the book is a helpful resource for someone who is searching for direction in a maze of opinion and experts. As a special educator, I try to keep an open mind about therapies when it comes to students with an ASD or AS. Given that every child is different, I extrapolate from this that every child will respond to treatment differently. I am advocate of whatever works. And every parent needs to follow their own heart, their own medical professional's expert advice, and be patient with their child. There is beauty in the uniqueness of every child with AS and it is my hope that every parent will see this beauty and choose what is best for their child and their family. The book is a guide and it should be taken as that.
2 internautes sur 3 ont trouvé ce commentaire utile 
1.0 étoiles sur 5 Suggestions from everyone...except Aspes themselves... 7 février 2015
Par M - Publié sur Amazon.com
Format:Format Kindle
Important to some, this author is a proponent of Autism Speaks. (What's wrong with them? Do a danged web search. "The Caffinated Aspie" has a solid blog post on the matter, sources and everything. And, now that I'm not on my tablet: https://en.wikipedia.org/wiki/Autism_rights_movement#Autism_Speaks_boycott and https://thecaffeinatedautistic.wordpress.com/new-autism-speaks-masterpost-updated-62014/). The author is also a fan of behavior modification tools that are pretty much Calvinist predestination applied to psychology. Your kid doesn't have free will; she's just a product of rewards and punishments. The author is a major fan girl for ABA, but her joyous reviews lack any input from, arguably, the most important demographic of all: adults who were subjected to it as children. This is true of every single "recommendation" she makes; it's all about the opinions of self-appointed "experts," and the whole book reads like somebody gossiping about me right in front of me, yet pretending I'm not even there! If you're an adult Aspie who thought there might be something in here for you, too...prepare to have your intelligence insulted on a pretty regular basis. I would not subject any child of mine to any of the parental advice in this book. The only plus I can really cite is that the author doesn't have the phobia of medication that I've seen in other books on AS.

Time to see if I can return this and get my money back...
1 internautes sur 1 ont trouvé ce commentaire utile 
5.0 étoiles sur 5 Five Stars 4 mars 2015
Par Johnny - Publié sur Amazon.com
Format:Broché|Achat vérifié
Careful look at our current understanding of this frustrating condition.
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