From Library Journal
Woodbine House has done it again! They have created another thorough yet easy-to-understand guide for parents of special-needs children. This one is especially important because of the absence of other good parenting texts on Fragile X Syndrome, which is one of the most common genetic causes of mental retardation. Recent evidence suggests that it may be even more prevalent than Down Syndrome. The book follows the publisher's well-established format, covering topics such as diagnosis, medical concerns, family life, education, legal issues, daily care, and advocacy. Each chapter closes with statements from other parents. As usual, the resource list in the back is well worth the cost of the book. Of special note is the chapter on education, which offers one of the most extensive coverages of Individual Education Plans (IEPs) and other educational hurdles offered by any book in recent years. Essential for all consumer health collections.DKellyJo Houtz Griffin, Eatonville,WA
Copyright 2000 Reed Business Information, Inc.
Book Description
Fragile X syndrome is believed to be the most common genetic cause of mental retardation, even more common than Down syndrome. It can result in a wide range of developmental delays, learning disabilities, and physical characteristics-which all tend to be more pronounced in boys than in girls.
At last, there is a comprehensive book on fragile X syndrome for parents. The first and only book of its kind, Children with Fragile X Syndrome provides a complete, sensitive introduction to fragile X syndrome, an inherited, genetic condition caused by a mutation on the X chromosome. This new guide is written by renowned professionals and experienced parents, who offer an in-depth look at the issues and concerns affecting children and their families. It covers: diagnosis; parental emotions; therapies and medications; development; early intervention; education; daily care; legal rights; and advocacy.
With recent breakthroughs in research and effective treatments, therapies, and educational strategies, the future of children with fragile X syndrome is more promising than ever. Now parents and families have this indispensable guide as a source of up-to-date information, answers to their questions, and support from people who know about the challenges of raising a child with fragile X syndrome.
