From School Library Journal
Grade 5 Up. This manual has been developed to help young people who have spina bifida attain as much control over their own care and achieve as much independence as possible. Years ago, babies born with this disease (1 in 1000 is affected in the U.S.) had a slim chance of survival. Now, due to advances in medical knowledge, many people can expect a long and full life?going to college, having careers, marrying, and even having children. Written by various nurses and therapists, this resource discusses the nitty-gritty of everyday living?mobility; dressing; and care of the skin, bowels, and urinary tract. How to deal with family, school, and issues of sexuality, including having sex, are also covered. The writing is clear, easy to read, and matter of fact. Suggestions of resources with addresses and phone numbers are included. Black-and-white cartoons add to the friendly tone of the text. This is a unique book with a special audience that should be available for the young people who need it and the adults who teach and care for them.?Martha Gordon, formerly at South Salem Library, NY
Copyright 1997 Reed Business Information, Inc.
Copyright 1997 Reed Business Information, Inc.
Booklist
Gr. 8^-12. A mixed bag of essays by a variety of health care professionals considers a wide range of issues related to spina bifida in an effort to help those who have it become more independent. Medical terms are clearly explained, but the writing is pedestrian, and the amateurish cartoon illustrations (seen only in galley) add little. What's more, YAs with the condition probably won't discover anything new in the chapter on medical particulars or learn much from the section on nutrition, which is very general. The book is most successful when it deals with daily self-care concerns, especially those related to skin care and mobility. Also included are chapters dealing with questions about sexual matters (including discussion of orgasm and pregnancy), school, and family relationships. Use this in tandem with Kaufman's Easy for You to Say: Q & As for Teens Living with Chronic Illness or Disability (1995), a more comprehensive look at the issues. Stephanie Zvirin
