Intersex in the Age of Ethics was very instructive.
The chapter titled Pediatric Ethics included very good examples and the recommendations seem very necessary.
The case study of the John/Joan identical twin clearly shows the tendency of the surgeons who operate to publish results in a way to allow them to continue....
Everyone seems to say that the surgeons, etc. strongly "encourage" that the operation(s) be kept secret from the patients, even when the surgery is only done for cosmetic reasons. This results in the patients feeling shame, and sometimes having suicidal thoughts.
In their final conjecture they say, "Parents cannot be informed of the expected outcome of the pediatric surgery because the adult outcome studies have not been done. And the adult outcome studies have not been done because these adults have not been informed of the surgery. We may have here an epistemological 'black hole' that entraps parents, patients, and physicians in lies, secrets, and avoidable ignorance."
This book will be difficult for some to read, I think, because it involves material people in our culture do not normally discuss with each other.
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