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A History of Autism: Conversations with the Pioneers Broché – 25 juin 2010
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- Features in–depth discussions with leading professionals and pioneers to provide an unprecedented insight into the historical changes in the perception of autism and approaches to it
- Presents carefully chosen case studies and the latest findings in the field
- Includes evidence from many previously unpublished documents and illustrations
- Interviews with parents of autistic children acknowledge the important contribution they have made to a more profound understanding of this enigmatic condition
- Nombre de pages de l'édition imprimée400 pages
- LangueAnglais
- ÉditeurWiley-Blackwell
- Date de publication25 juin 2010
- Dimensions15.24 x 2.08 x 22.86 cm
- ISBN-101405186534
- ISBN-13978-1405186537
Description du produit
Revue de presse
Quatrième de couverture
Meticulously researched, the book draws on evidence from previously unpublished documents, as well as the latest findings and case studies. In addition, interviews with parents of autistic children confirm the essential contribution they have made to a more profound understanding of this enigmatic condition.
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Détails sur le produit
- Éditeur : Wiley-Blackwell (25 juin 2010)
- Langue : Anglais
- Broché : 400 pages
- ISBN-10 : 1405186534
- ISBN-13 : 978-1405186537
- Poids de l'article : 508 g
- Dimensions : 15.24 x 2.08 x 22.86 cm
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Un problème s'est produit lors du filtrage des commentaires. Veuillez réessayer ultérieurement.
Je n’ai eu aucun problème avec.
C'est le point de vue d'un autiste qui à un enfant autiste, et qui souhaite faire la lumière sur cette histoire rendue très obscure par la médecine, de l'Autisme. Le livre, date un peu, mais les arguments et témoignage apporté dedans sont encore valable pour contredire les propos honteux d'Edith Shiffer sur Asperger.
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For me personally, although I am interested in reading about those with autism, and how their experiences might relate to my son in order to help understand him and seek treatment, it is just as important for me to understand the backgrounds of traditional professionals in this field. And this need is especially in light of the fact that, even though I might prefer limiting my son's exposure to professionals that do not keep up with the latest research, the fact is that much of the traditional thinking that is pervasive throughout what the author has to share continues to exist not only in the medical community, but in the culture at large.
Up until now, the only other text I have read that attempts to thoroughly examine the history of autism is "The Age of Autism: Mercury, Medicine, and a Man-Made Epidemic", by Dan Olmsted and Mark Blaxill (see my review). While I still recommend this other text, because of the extensive look that it provides to the Kanner 11 (the first 11 individuals diagnosed with autism by Dr. Leo Kanner, who were born in the 1930s), the breadth that Feinstein shares here is much more thorough when covering traditional professionals, and so I think reading both of these books helps provide a balanced view to anyone trying to understand this field.
After first discussing the two great pioneers in the field of autism, Dr. Hans Asperger and Dr. Leo Kanner, the author walks the reader through successive decades following the first diagnoses, offering great detail with regard to both the professional and public mindset that evolved over that time. During this walk through time, it is clear that although the goal of this text is to be a history, Feinstein also provides insight along the way, and as a parent who has personally witnessed the strength with which many other parents fight to help their children, it is gratifying that the author recognizes the improvements that would not have otherwise occurred were it not for parent involvement.
One interesting aspect that some readers might find of interest is that biomedical treatment of autism started being investigated decades ago, and is not a recent development, even though research in the area of biomedical treatment has continued to grow significantly in recent years due in large part to the increased rate of autism. The possible role that genetics might have to play also entered the research community during the early years as well, but unfortunately genetics was directly associated with the eugenics mindset that started in the United States and was carried out in Germany, and so the focus on psychological aspects of autism continued to dominate for decades.
Another aspect that I personally appreciated is the thoughts that the author has to share regarding autism in developing nations, and the direction that autism treatment might take in coming years, topics that Feinstein presents in the concluding two chapters. And even though I might not necessarily agree with all of his conclusions, he shares a fairly balanced view, and provides hope in the midst of a subject that can be depressing at times. For example, one professional is quoted as saying, after discussing the fact that he has seen children with autism either recover or significantly improve, "Are we going to assume it was a misdiagnosis in each of these cases? Are we prepared to accept that some people can recover from cancer, but not autism? We write these children off ahead of time." Well said.
The "history of autism" as conceived by Adam Feinstein, consists almost solely as a history of the neurotypical professional community which has built the scaffolding around the autistic community. The book contains little else beyond the history of non-autistic professional infighting. When not being "unfailingly polite" to and about each other; apparently they've been in continulous conflict with each other as to who will have the right to: define, manage, teach, theorize about, and garner research monies and power in the field of autism.
Only a scant handful of actual autistics are mentioned by their full names. Autistic characters in classic fiction are summed up with a single sentence.
The last third of the book does include a fascinating collection of different cultural responses to autism from various places in the world. However, by my count, only 4 adult autistics are mentioned by name toward the end of the book: Qazi Fazli Azeem of Pakistan, Ros Blackburn (of Snowcake fame), Donna Williams, and of course, Temple Grandin. And there you have it. It turns out that the history of autism begins not with the beginning of mankind, not within the autistic community, not with autistics at all, but rather with the definitions given by Kanner and Asperger in the 40's, and consists almost entirely of unnamed autistic children and neurotypical professionals.
There is no mention of conflicting perspectives of autism within the autistic community.
There is no discussion of autistic responses to theories and practices generated by professional neurotypicals in the field.
There is nowhere in this book, the recognition that such a response is even possible. Or for that matter, even that an autistic community exists outside the parental/professional axis of operations.
Autistics have been almost entirely left out of this well-documented history of the professional field of autism.
(On a side note, not long ago, I watched a documentary about the history of the deaf community in America. All the hearing reviewers gave it 4 or 5 stars, out of a possible 5. All the self-identified deaf reviewers gave it one star, because it had no subtitles. It was simply unacceptable, one would think for obvious reasons. Needless to say, the deaf community is decades ahead of the autistic community.)
So, here we have a fascinating history of autism, without the autistics.
Yet oddly, given the above reviews written by the professionals in the field; apparently, (not only is this not a cause for concern) no one seems to have so much as noticed. (?)
However,(with all that said) for all the limitations of it's entirely, (and tiresomely) neurotypicentric perspective; it does make for an extremely interesting read (albeit one that needs to be taken with a grain of salt) and a mindful consideration of the decidedly limited framework of its perspective.
Yep, the times "they are (ever so slowly) changing". One lives in hope.: )
Julia Bramsen